Resources

EDUCATION


Knowledge is one of your most powerful tools for a successful life with food allergies. MOCHA created this list to get your food allergy education launched and to stay up-to-date!


National Food Allergy and/or Asthma Awareness and Advocacy Organizations


Allergy and Asthma Foundation of America (AAFA)
Kids with Food Allergies (KFA) - A division of AAFA
Allergy and Asthma Network (AAN)
Food Allergy and Anaphylaxis Connection Team (FAACT)
Food Allergy Research and Education (FARE)

Other National Organizations of Interest
Allergy Strong
Association of Asthma Educators (AAE)
Broad Institute - Food Allergy Science Initiative (FASI)

Centers for Disease Control & Prevention (CDC)
Digestive Health Foundation
Food Allergy Management & Education Program (FAME)
Food Allergy Research & Resource Program (FARRP)
Food Equality Initiative
Elijah-Alavi Foundation

Mary H. Weiser Food Allergy Center
Natalie Giorgi Sunshine Foundation

National Association of College & University Food Services (NACUFS)
National Association of School Nurses (NASN)

National Education Association (NEA)

National Institute of Allergy & Infectious Diseases (NIAID)

National Institute of Health (NIH)

National PTA
Red Sneakers for Oakley
U.S. Food & Drug Administration (FDA)
World Allergy Organization (WAO)

Other Food Related Conditions
EOSINOPHILIC DISORDERS

Advocate Children's Hospital (Park Ridge) EoE Clinic
American Partnership for Eosinophilic Disorders (APFED)
Campaign Urging Research for Eosinophilic Disorders (CURED)
Center for Pediatric Eosinophilic Disorders at Children’s Hospital of Philadelphia
Children’s Hospital of Denver Digestive Health Institute

Children’s Hospital of Wisconsin
Cincinnati Center for Eosinophilic Disorders at Cincinnati Children’s (CCED)

Marc E. Rothenberg, MD, PhD (Bio)
Philip E. Putnam, MD (
Bio)
Eosinophilic Family Coalition (EFC)

EOE Home

Lurie Children's Hospital of Chicago

Barry K. Wershil, MD (Bio)
Northwestern Medicine

Ikuo Hirano, MD (Bio)
Rady Children’s Specialists of San Diego Eosinophilic Gastrointestinal Disorders Clinic 


CELIAC DISEASE


Celiac.Org

University of Chicago Celiac Disease Center

Stefano Guandalini, MD (Bio)


FPIES


FPIES Foundation


Additional Educational Resources
Below are highlights of a few educational resources that we have found helpful. This is a short list to get you started, and please explore the organizations listed above. They offer medically vetted information and sound advice!

Living with Food Allergies

FARE’s Living with Food Allergies webpages Allergy and Asthma Network: What if I Can’t Afford my Epinephrine Medication?Allergy and Asthma Network’s Managing Allergies at School: A Guide for ParentsKids with Food Allergies (KFA) - A Division of the Allergy and Asthma Foundation of America

Legal and School Accommodations - K-12 and College

Laws and Regulations: Learn about the U.S. laws and regulations regarding food allergies, from food labeling to students’ rights.
US Dept of Education Office for Civil RightsAAFA’s 504 Plans to Accommodate Children’s Asthma or Food Allergies at SchoolAllergy and Asthma Network’s Managing Allergies at School: A Guide for School Staff
FAACT’s Civil Rights Advocacy Center
FAACT’s Legal Considerations (for college)

College

FAACT’s College Resource Center
FARE Food Allergy College Search

Find Local and Virtual Support Groups

AAFA Support Group Finder (Virtual and International)
FAACT Recognized Support Group Finder
FARE Recognized Support Group Finder

No Nuts Moms Group (Finder and link to Facebook Support Groups - nationally and locally)

Advocacy

Many positive changes in food allergies have been made possible by people like you who care, share their stories, raise their voices, and help decision-makers make the best choices for those with food allergies. You, too, can take action and become a impactful part of this community through advocacy!

Advocacy Opportunities and Education

ILLINOIS Specific Resources

Illinois State Board of Education Guidelines for Managing Life-Threatening Food AllergiesDeerfield Schools District 109 Food Allergy Management Plan
Hinsdale Dist. 181 Food Allergy Management Plan
Lake Forest School District 67 Food Allergy/Anaphylaxis Procedures
Wilmette School District 39 Resource Guide for Supporting Children with Life-Threatening Allergies

Illinois Emergency Epinephrine Act: Illinois has also passed an Emergency Epinephrine Act which allows any school to voluntarily keep an emergency supply of epinephrine auto-injectors on hand. These school-supplied auto-injectors may be used by school staff for any child who has a written plan in place and by school nurses when they assess that a student is having a life-threatening allergic reaction.

Illinois Gov Enacts Law Protecting EpiPen Prescribers

Sometimes a hug from another allergy mom is really what I needed. What a relief to have a trusted resource on the web for all the information we need. Sharing with those that are ‘walking in the same moccasins’ gives me the courage I need. I cry every time I watch that FAP video. It’s powerful! Will we ever be able to not worry? Those power emails are saving me. I just can’t keep up with all the current info. I don’t know what I would have done without MOCHA. You really are the source for food allergy Cliff notes! I feel relieved to be able to laugh and cry with others like me. How did you do this without a support group years ago? Does this get easier? I have to admit, I’m really glad Anne and Denise went through this with their kids before me. How do I make a cake with no milk and eggs? Do any fast food places have anything safe? I enjoy the “Cheat and Eats” because we have no allergenic foods in my house. Thanks for training me with the Auvi-Q and Epi-pen. I feel more confident knowing I at least know what to do with the “real thing. So I’m really NOT crazy? I was so excited to find a resource for moms like me and my food allergic child. Where do I find… How can we travel? How will we ever send our food allergic child to college? DATING?!!? I need more info on OIT… Can you connect me with a doctor that… I enjoy the comradery at the Conferences, Walks and Luncheons.