EDUCATION
Knowledge is one of your most powerful tools for a successful life with food allergies. MOCHA created this list to get your food allergy education launched and to stay up-to-date!
National Food Allergy and/or Asthma Awareness and Advocacy Organizations
Allergy and Asthma Foundation of America (AAFA)
Kids with Food Allergies (KFA) – A division of AAFA
Allergy and Asthma Network (AAN)
Food Allergy and Anaphylaxis Connection Team (FAACT)
Food Allergy Research and Education (FARE)
Other National Organizations of Interest
Allergy Strong
Association of Asthma Educators (AAE)
Broad Institute – Food Allergy Science Initiative (FASI)
Centers for Disease Control & Prevention (CDC)
Food Allergy Management & Education Program (FAME)
Food Allergy Research & Resource Program (FARRP)
Food Equality Initiative
Elijah-Alavi Foundation
Mary H. Weiser Food Allergy Center
Natalie Giorgi Sunshine Foundation
National Association of College & University Food Services (NACUFS)
National Association of School Nurses (NASN)
National Education Association (NEA)
National Institute of Allergy & Infectious Diseases (NIAID)
National Institute of Health (NIH)
National PTA
Red Sneakers for Oakley
U.S. Food & Drug Administration (FDA)
World Allergy Organization (WAO)
Other Food Related Conditions
EOSINOPHILIC DISORDERS
Advocate Children’s Hospital (Park Ridge) EoE Clinic
American Partnership for Eosinophilic Disorders (APFED)
Campaign Urging Research for Eosinophilic Disorders (CURED)
Center for Pediatric Eosinophilic Disorders at Children’s Hospital of Philadelphia
Children’s Hospital of Denver Digestive Health Institute
Children’s Hospital of Wisconsin
Cincinnati Center for Eosinophilic Disorders at Cincinnati Children’s (CCED)
Marc E. Rothenberg, MD, PhD (Bio)
Philip E. Putnam, MD (Bio)
Eosinophilic Family Coalition (EFC)
EOE Home
Lurie Children’s Hospital of Chicago
Barry K. Wershil, MD (Bio)
Northwestern Medicine, Feinberg School of Medicine
Ikuo Hirano, MD (Bio)
Rady Children’s Specialists of San Diego Eosinophilic Gastrointestinal Disorders Clinic
CELIAC DISEASE
Celiac.Org
University of Chicago Celiac Disease Center
Stefano Guandalini, MD (Bio)
FPIES
FPIES Foundation
Additional Educational Resources
Below are highlights of a few educational resources that we have found helpful. This is a short list to get you started, and please explore the organizations listed above. They offer medically vetted information and sound advice!
Living with Food Allergies
Food Allergy Research and Education (FARE)’s Living with Food Allergies webpages
Food Allergy and Anaphylaxis Connection Team (FAACT) Behavior Health Center
Allergy and Asthma Network: What if I Can’t Afford my Epinephrine Medication?
Allergy and Asthma Network’s Managing Allergies at School: A Guide for Parents
Kids with Food Allergies (KFA) – A Division of the Allergy and Asthma Foundation of America
Legal and School Accommodations – K-12 and College
Laws and Regulations: Learn about the U.S. laws and regulations regarding food allergies, from food labeling to students’ rights.
US Dept of Education Office for Civil Rights
AAFA’s 504 Plans to Accommodate Children’s Asthma or Food Allergies at School
Allergy and Asthma Network’s Managing Allergies at School: A Guide for School Staff
FAACT’s Civil Rights Advocacy Center
FAACT’s Legal Considerations (for college)
College
FAACT’s College Resource Center
FARE Food Allergy College Search
Find Local and Virtual Support Groups
AAFA Support Group Finder (Virtual and International)
FAACT Recognized Support Group Finder
FARE Recognized Support Group Finder
No Nuts Moms Group (Finder and link to Facebook Support Groups – nationally and locally)
Advocacy
Many positive changes in food allergies have been made possible by people like you who care, share their stories, raise their voices, and help decision-makers make the best choices for those with food allergies. You, too, can take action and become a impactful part of this community through advocacy!
Advocacy Opportunities and Education
Allergy and Asthma Foundation of America (AAFA) – Advocacy Center
Allergy and Asthma Foundation of America (AAFA) – Join Action Network
Allergy and Asthma Network Advocacy and Public Policy (AAN) – Advocacy Action Center
Food Allergy and Anaphylaxis Connection Team (FAACT) – Government Relations
Food Allergy Research Education (FARE) How to Advocate
FARE Courage at Congress -March 26-28, 2023 (follow the link to learn about past and future events)
AAN Asthma and Allergy Day on Capital Hill – May 8th, 2024
ILLINOIS Specific Resources
Deerfield Schools District 109 Food Allergy Management Plan
Hinsdale Dist. 181 Food Allergy Management Plan
Lake Forest School Districts 67 and 115 Food Allergy/Anaphylaxis Procedures
Wilmette School District 39 Resource Guide for Supporting Children with Life-Threatening Allergies
Illinois Emergency Epinephrine Act: Illinois has also passed an Emergency Epinephrine Act which allows any school to voluntarily keep an emergency supply of epinephrine auto-injectors on hand. These school-supplied auto-injectors may be used by school staff for any child who has a written plan in place and by school nurses when they assess that a student is having a life-threatening allergic reaction.
Illinois Gov Enacts Law Protecting EpiPen Prescribers
Special Education and Advocacy Law
